Emily7 - seizure info
Moms View Message Board: General Discussion: Archive April 2004:
Emily7 - seizure info
Hi Emily. I was reading another list today, and this info was posted. I thought you might find it interesting...
Vist Exceptional Parent's website, www.ep.com, for more info or to register.
April 21 - Web Seminar on
Seizure Management
"The Use of VNS TherapyT As a Key Treatment Option for the Management and
Control of Refractory Seizures"
Register Now for this FREE Event
Presenters:
Steven Wolf, MD
Director of Pediatric Neurology, St. Luke's Roosevelt Hospital , New York ,
NY
Steven Karceski, MD
New York Presbyterian Hospital , Comprehensive Epilepsy Center , New York ,
NY
Session Moderator:
Seth Keller, MD
New Lisbon Development Center, Lumberton, NJ
OPEN TO: Physicians, Allied HealthCare
Professionals, Families and Caregivers
Registration IS FREE as is CME/CEU accreditation for qualified individuals.
Approximately 40% of patients with epilepsy have seizures that do not
adequately respond to conventional drug therapy. Vagus Nerve Stimulation,
VNS TherapyT, approved by the Food and Drug Administration (FDA), offers a
therapeutic option for patients with pharmacoresistant seizures. VNS
TherapyT has had particularly beneficial results in those patients who have
mental retardation and other developmental disabilities and who are living
in Intermediate Care residential settings (ICF's/MR). These on-line seminars
/teleconferences will present data associated with the use of VNS TherapyT
as adjunctive therapy for refractory seizures in the MR/DD population.
This session is being brought to you through the cooperation of EP Global
Communications (Exceptional Parent), the EP Foundation for Education (EPFE),
and Conemaugh Health Systems - and with the support of the Child Neurology
Society, the Child Neurology Foundation, Epilepsy Foundation of New Jersey
and the American Academy of Developmental Medicine and Dentistry. These
seminars are partially underwritten by an unrestricted educational grant
from Cyberonics, Inc.
I just wanted to mention, I know a lot of it doesn't apply to who your brother is, but the info might still be good because drugs don't work for him.
Thank you so much for posting this. I will forward this to him & my parents. I feel like we haven't tried everything we can for him. He is going to be 28 this year & hasn't been able to really have a life.
I found the site & asked if the seminar would have any info that may help him. In case anyone else is intersted in the seminar, the address is www.eparent.com.
Thank you so much Marcia!
No problem. Has he tried the ketogenic diet? I know it works wonders for some people.
Wow, I'm glad to see this. I wasn't sure if the vagus nerve pacemaker (stimulator) was in general use. I'm glad to see that it is. According to the program I sa, it did wonders for a little boy.
Ame
We have asked his doctor about that diet, but were told it is for kids.
The VNS has been available for several years now. My brother had his put in I think in 2002, it worked for a little while, but not any more.
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