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Kidney or Dialysis Foundation

Moms View Message Board: General Discussion: Archive March 2004: Kidney or Dialysis Foundation
By Amecmom on Friday, March 26, 2004 - 08:57 pm:

Does anyone know of a worthy kidney dialysis foundation? I've done some internet research and there seem to be many. A relative of a relative passed away of long-term kidney disease, and I'd like to make a donation in her memory. However, I'd like the money to go to someplace that really helps people. If you, or someone you know, has knowledge of a good foundation, or has been helped by one, please let me know the name of the foundation.
Any suggestions would really be appreciated.
Thanks,
Ame

By Ginny~moderator on Friday, March 26, 2004 - 11:18 pm:

You could ask the hospital where your relative was treated, or your local hospital. Are you looking for a foundation or group that is primarily involved with/concerned with research? Or public awareness, education and advocacy about kidney disease? Or direct services to dialysis patients?

You're in New York state, I see, but are you near NYC or some other major city? There are often programs based in large cities which focus on needy/"worthy" people in their area and provide direct service, which may be what you are looking for. But again, I would talk to either the social service office at a good sized hospital, or the hospital department that works with dialysis patients, or even a local urologist's office. The providers often have a pretty good notion of where to turn for help for their patients and have a better likelihood of knowing which organizations are better at providing services.

By Amecmom on Saturday, March 27, 2004 - 03:00 pm:

Wow, Ginny,
Those are some good suggestions. I was kinda' hoping someone on this board would know of a good organization, so that I could avoid all the research you suggest. The deceased lived in Florida with her family, so something NY based would probably be less appropriate than a national foundation.
As to the type of foundation, perhaps one that provides support for people suffering from kidney ailments or undergoing dialysis.
Thanks,
Ame

By Ginny~moderator on Sunday, March 28, 2004 - 07:24 am:

Ame, here is the National Kidney Foundation of Florida, which is part of the National Kidney Foundation program:
http://www.kidneyfla.org/

Looks like they provide a variety of services, including transportation to and from dialysis and one-time grants to patients with needs. It appears to be the central organization in Florida for dialysis/kidney disease non-profit programs. If you decide to make a gift, you can specify which part of their program it goes to - patient services, research, etc.


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