An update
Moms View Message Board: Parenting Children with Special Needs: An update
I just wanted to post a little what has been happening. I finally found the time line I was looking for. Our school is following it to the T. They have until dec 20 to finish testing and they are almost there. In the past week (according to my son) he has been with the diag at least twice, the speech lady twice and the GT teacher once. This am we are meeting with the psych. she has requested to meet with me also. I got a call yesterday about this. I am thinking geesh, good thing I don't have a life! So I made a written request on Sept 5, I finally got the thumbs up late oct and we are still only in testing phase. It is so frustrating. However his teacher is great, good for him and he is doing amazing. Who knows what they will really find, but I am sure they will fine something. After lots of reading, I think maybe it will just be a non verbal LD, maybe pdd-nos, who knows, it is driving me crazy and I am ready to have this wrapped up!
Sometimes the kids don't test for anything. Schools drive you to a nervous break down and when it is all said and done it is for nothing. I had john privately tested and they finally said he has no label - no aspergers no pdd-nos nothing. I kind of feel like strangling some people. Worry me for nothing. Took me four months to get all the tests done. I did learn ds iq went up 20 points from when he was 2 years old. The psycologist said that it is common that iq will go up with a true development delay as the delays are corrected.
At least you have a timeline and know what is going on. Hang on until then!
At last,they are finally moving and taking you seriously! I'll keep my fingers crossed that this works out well. Let us know how your meeting went this morning. Are you able to get any services before you have an official diagnosis or is everything waiting on this? {{{Kim}}} Email me if you need to chat or vent!
Here is my quick meeting update. Tink, I will email you a longer version tomorrow. He is going to qualify for services. They will have his placement meeting on Jan 17, they cannot do any services until them. Although the diag, the pysch, his teacher and I all think he is dyslexic, they haven't actually done that test yet. It some how doesn't fall under the same guidelines. The diag was great, she went over all the testing (she didn't have to do that until jan). But talked about the results, let me hold the paper and write down what I wanted. I did really feel like she was on my side. His official dx through the school is a reading learning disablity. We will find out more specifics on placement later, but in general he will spend and hour at least at day in a resource room, and have weekly time in speech, hopefully dyslexia, and probably OT. And he will have the option to use the content master room as needed. Oh and he will be going to GT classes once a week too. What a kid! He is a tough kid and really is very mild, but very comorbid. I haven't been able to get teachers to look past his activity level and for the first time I had a room full of people say, there may be lots of little issues, but academically his issue is reading and all those little issues aren't holding his reading back, it is some very specific lack of skills that is causing that. That being said, it was a hard meeting and it is just starting. As all of you here know...you know there is something wrong, none of this was new information, but i guess part of me always holds back and wants them to say, hey your kid is normal, quit worrying. The reality is he is mild and on the edge and needs just a little more than he is getting. And that will be fixed in jan.
Kaye - have you looked into the program at Scottish Rite? They offer free dyslexia instruction and free evaluations. I believe there is one in Houston. My guess from what you wrote is the district doesn't recognize dyslexia and that will be a problem as far as getting proper multi-sensory sequential research based reading instruction. Also check out the message board on www.schwablearning.com.
Kaye, I'm so glad you found people that are looking past his issues and are interested in actually figuring out how to help him learn! I got your email and I'm about to run out of the house so I'll get back to you. {{{Hugs}}} to you and your ds.
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