I received my notice and the box saying develop or revise the current IEP was checked. I thought that was odd since he doesn't have an IEP (he has a 504) and hasn't had the full battery of tests yet. I guess they are going off our outside psychiatric evals at this point. I'm VERY happy that they are identifying him right up front. I do need to make sure they do the rest of the testing though.

By Feona on Thursday, August 18, 2005 - 07:16 am:

What does PPT mean?

By Lauram on Thursday, August 18, 2005 - 10:48 pm:

Planning and Placement Team meeting

By Kaye on Friday, August 19, 2005 - 11:45 am:

So where did you go to get your outside evaluations? Our ped hasn't been the most help, as she seems to think our little guy is okay. BUT he isn't, and I am wondering just where to we go now!

By Lauram on Friday, August 19, 2005 - 06:10 pm:

We have had lots ot outside evals. We're WAY past the pediatrician at this point! We've been seeing psychologists since he was 4 (he's 8) and a neurologist since he was 5. He became suicidal in March and June of this year and the neurologist told us he is in over his head and referred us to a psychiatrist. He has had a full psychiatric eval and we also brought him to the Yale Child Study Center/ Tourette's Syndrome/OCD specialty clinic for a full eval. The psychologist we see currently has been seeing him since February 2004. She wrote a report detailing all his disabilities. We brought all the concerns of the psychiatrist to the Yale clinic and they will be including that in their written report. We should be getting that report within the next week if all goes as planned. He needs neuropsychological testing to confirm the diagnosis of a NVLD (he has 5 other diagnoses though at this point). We are hoping that the school will agree to this. This will include the full battery of a WISC, a speech and language eval (pragmatics specifically) an OT eval, cognitive functioning and social/emotional.

How old is your son? What are your concerns? (BTW- our pediatrician told me he would grow out of it. I still chuckle at that one!)

By Kaye on Saturday, August 20, 2005 - 10:15 am:

My little guy is just odd. He has several autistic tendancy, a few self stimming behaviors, loves to swing, makes a lot of noises. But he is also very creative, way too imaginative. For example, his self portrait day at school had 6 people in it, I ask, he said those are all of me, this one is me as "mario", this one as" a power ranger". I am pretty sure he can seperate and know these are pretend, but he sure wishes he didn't have to. He has issues sitting in his seat. But with the right reward he can reall behave, he is really consequence driven. Last school year, he averaged about 5 green days each 9 weeks (good days). So the last 9 weeks we offered to pay him $1 a green day, his behavior changed and he only had 5 days that were not green. Although he can control it, he really doesn't want to, it is difficult for him. He is really a square peg and doesn't quite fit in. When playing with other kids, he loves to have a friend to play, but has some pretty rigid ideas on what and how they should play, instead of compromising, he will parallel play. He notices, he will mention that it would be more fun if so and so would play his game, but if he won't he has to play alone. But when you look at his game it is very very creative and not a structured type thing (if that makes sense). Like last nights game was invite someone, so he drew up about 10 invites, wanted help doing this, but no one would comply, they had to have birthday hats, but each person had a different color pants and shirts, you were supposed to hand them to one person with the directions to invite someone else. When someone got two, they could check and see if they were the winner, apparently to win you had to be the first to get 2 invites that had the shirt from one and the pants from the other to match.

What an odd bird. So this year, instead of working he just is doing the minimum, he is a 2nd grader, he is behind in reading, which is throwing his math off (can't read the story problems). I met with the teacher yesterday, we are going to start the special ed testing, we are sure that his IQ and his ability are way off by this point, but we will see. I know he needs help, but am pretty clueless as to a label and then where to go. My ped says i went "swimming in the wrong gene pool", hubby is an engineer, our psych eval in kinder said he was "quirky" but with in normal limits.

By Feona on Sunday, August 21, 2005 - 08:08 am:

If you really want to get him evaluated you can go to you insurance company and get a list of psychologist that do development evaluations. I think I had to call 12 before I found one. One didn't have the proper test for such a young child. Finally found one. We aren't done yet. After 2 appointments....

Or better yet go to the major childrens hosptial like schneiders hosptial in you area and go to the developmental psychology department and see if you insurance will pay for that.